During the past 4 1/2 years of TOS, I do believe I have had some RSD that has come and gone. Of importance is to get to a top neuro while you think it's active, and get some opinions.
I think these docs can spot it and know what to do about it, and when to wait for surgeries while it calms down. So you don't need to fear it forever.
Just be careful about it.
Best of luck and hugs to each of you.