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Old 12-01-2012, 12:28 AM
cuffs558 cuffs558 is offline
Junior Member
 
Join Date: Jun 2009
Posts: 12
15 yr Member
cuffs558 cuffs558 is offline
Junior Member
 
Join Date: Jun 2009
Posts: 12
15 yr Member
Smile

I also agree with everyone else's comments. It's tough to find anyone who truly knows this disease without the trial and error route and we the patients end up to be the ginney's most of the time. As 100 people could have this disease and 90 some could be different then the other on a sliding scale of where they are at with it. I have found that for me heated water - not hot or cold- but a constant warmer temp pool or hot tub helps for a bit but not to do to much as you will pay for it later. When "normal" you fight through the pain to get to your goal. Not with rsd. When the pain is elevated STOP. The meds take the edge of but the cream allows me to wear clothes, & exercise just prior to elevated pain keep you moving.
good luck my friend...
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