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Member
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Join Date: Apr 2009
Location: Tenn
Posts: 554
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Member
Join Date: Apr 2009
Location: Tenn
Posts: 554
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Quote:
Originally Posted by rach73
Hi Jana,
I'm glad my rambling posts are helping!
Yes, Rach!! Helping me to understand. I was diagnosed very easily with MG -- positive on binding, blocking, and modulating. So many here have a difficult time being dx -- I guess it is MY turn to have trouble figuring out what is wrong. 
Weak leg muscles can also be a symptom of POTS or dysautonomia, so add that to MG and thats a heap of trouble!
As I say google Pots place or Dinet and you will find a wealth of info. Most people dont just have Pots the have other autonomic nervous system issues too and its all covered including mast cell activation disorder. They are a really friendly bunch and will answer any questions you may have.
If you are on facebook there are loads of groups on there too. A great blog on the subject of dysautonomia is one called Living with Bob.
Any questions please give me a shout hun!
Thanks so much -- you are such a sweetheart!
Hugs
Rach |
Ok, so I did the poor man's tilt test yesterday. I had taken TWO Mestinon tablets a couple of hours before -- a total of 120 mg...............so, I'm thinking it is possible that my results aren't completely accurate (???).
Yesterday morning, I took my BP -- 110/60 and heartbeat was 59. I was actually in a little pain (gas), so I think this is why my BP was higher than normal (100/70 to 90/60). Here are th results of my test:
- While still laying down -- BP 130/88, HR 59
- As soon as I stood up -- BP 129/76, HR 62
- After 2 minutes -- BP 129/82, HR 60
- After 5 minutes -- BP 120/78, HR 62
- After 10 minutes -- BP 121/77, HR 61
- After 20 minutes -- BP 124/79, HR 61
I got SOOOOO tired of just standing -- and I was "weaving" all over the place to stay balanced -- I usually weave when trying to stand still, MG??? I dunno -- to me, it looks like my test results were ok. Of course the Mestinon seems to have raised my BP (????).
I looked up the NCS and NMS -- I have some of the symptoms of each, but not all.....maybe not a high enough percentage.
Confusion abounds in my poor head!
Again, THANKS Rach! 
__________________
~jana
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