Member
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Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
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Member
Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
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Hi Jana,
You need to do the poor mans TTT after about 12 hours fasting including liquids and no mestinon - if you can do that safely!!! That would give you a more accurate result. But as you are taking large doses of mestinon I wouldnt do it without a Drs supervision to be safe.
The weaving is your bodys natural way of keeping the blood from pooling in your legs - quite natural in dysautonomia and EDS.
I would say your heart rate is on the low side 60 should be the lowest maybe lower if you are an olympic athelete that maybe something you need checked. I know I feel absolutely horrible at 54bpm (lowest ive ever recorded it at). Its weird your heart did not even respond to the change in posture which is 15-20 bpm raise from your resting rate (it then drops back down again very quickly in normal people).
But I am not a Dr and this is only stuff I have picked up whilst researching my own illness. I dont want to look as if I am giving medical advice because I am not qualified to do so!
Something is definately going on hun. I would suggest asking to see a cardiologist that knows about dysautonomia. On Dinet they have a list of Drs if that helps.
Hugs
Rach
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Diagnosed with:
Postural Orthostatic Tachycardia Syndrome,Post Prandial Hypotension, Orthostatic Intolerance, Arrythmia, unstable blood pressure, severe autonomic nervous system dysfunction ,Ehlers Danlos Syndrome Type 3,Gastroparesis,IBS,Hidradenitis supprativa
And Myasthenia is still a possible diagnosis depending on which Dr I see.
My blog address is . .
Lord, grant me the serenity to acceptThe things I cannot change,The courage to change The things I can,
And the wisdom to hideThe bodies of Doctors I shot
When they said,"You're perfectly healthy,
It's All In Your Head."
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