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Member
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Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Member
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Annie, I do not think it is polymyositis because my creatine kinase (CK) was actually low so was my serum albumin.
The muscle weakness in my legs has gotten worse and I have it most of the day now. The muscles on the right side of my face are noticeably more droopy than the left. I have resolved the swallowing and chocking issues with changing the way I eat and drink. I had one instance of my head dropping, the same day that I could hardly move my legs. The constant fatigue has not changed much. The only other major symptom I have the does not fit MG is the diarrhea. Between the diarrhea and chewing issues I have lost 40 pounds in 6 months.
I do hope they diagnose something soon. I feel if my legs get much worse, I will need a walker,
thanks again,
kathie
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