I have been on daily dosages of prednisone since January 2010. My main symptom of MG is ocular and dealing with stress. My eyes will totally lock in one place and I can't move them left or right. This leads to double vision and incredible nausea. The first time this happened was right after my thymectomy (May 2009) while I was in the hospital and they used prednisone to clear the problem then. Once it did they worked me off.

The second time (Dec 2009) my useless (now X-neuro) tried two rounds of IVIG which did nothing so I ended up back in the hospital. He put me on prednisone and worked me up to 60 mg per day. In about four days my eyes corrected themselves but he said that I would have to stay on prednisone as a maintenance. I have been slowly working down the 60 mg dosage and thanks to a new neuro I am now taking 10 mg every other day. I want to stop taking it period and see if my eyes will stay normal. That is my plan and I am going to try to make it happen.

I knew osteoporosis would be a possibility but I truly had no idea how soon it would appear. My x-neuro should have tried to work my dosage down at a faster rate but I believe he could care less about the outcome which is one of many reasons he is my X-neuro. I mistakenly thought he was doing the best thing for me. Wrong!

Sorry for such a long explanation. Anyone who has read my post know that I'm not a person of few words.

Becky
Southern Bell