Originally Posted by rach73

Hi Jana,

You need to do the poor mans TTT after about 12 hours fasting including liquids and no mestinon - if you can do that safely!!! That would give you a more accurate result. But as you are taking large doses of mestinon I wouldnt do it without a Drs supervision to be safe.

The weaving is your bodys natural way of keeping the blood from pooling in your legs - quite natural in dysautonomia and EDS.

Wow! I never knew! I just thought I was weaving because my leg muscles were weak from MG. I'll be sure and say something at my next neuro appointment. No, I don't think I can do the poor man's TTT right now. But, thanks for the detailed "how to"!!

I would say your heart rate is on the low side 60 should be the lowest maybe lower if you are an olympic athelete that maybe something you need checked. I know I feel absolutely horrible at 54bpm (lowest ive ever recorded it at). Its weird your heart did not even respond to the change in posture which is 15-20 bpm raise from your resting rate (it then drops back down again very quickly in normal people).

I have ALWAYS thought my heart rate is low. I've had my thyroid checked multiple times. I used to be quite active -- at work, in the house, and in the yard......but, NOTHING to give me an "athlete's" heart rate. It did ALSO seem odd to me that my heart rate hardly changed. It seemed like a "normal" person's would vary more than mine did. STRANGE!!

But I am not a Dr and this is only stuff I have picked up whilst researching my own illness. I dont want to look as if I am giving medical advice because I am not qualified to do so!

Something is definately going on hun. I would suggest asking to see a cardiologist that knows about dysautonomia. On Dinet they have a list of Drs if that helps.

Hugs
Rach