I've met with one of my surgeons so far and he's decided that my only option is surgery to correct my TOS. I'm not really quite sure how he decided that for himself since he barely examined me didn't do any testing.
My concern is not that he's wrong about TOS, I've been diagnosed with it before in 2008, my symptoms are classic, everything else has been ruled out by other specialists, and I've already completed many rounds of different types of physical therapy with no results. I am concerned about how he could know that I need a first rib resection (no mention of scalenectomy but obviously very rushed with me and the hospital website does say that they treat TOS with a first rib resection and scalenectomy) or be prepared for preforming the surgery without any real imaging. I've not even been diagnosed with a TYPE of TOS though my symptoms point to arterial and neurogenic.
I meet with the other surgeon on the 14th and he is aware that I need a surgical consult and I've been told they do a complete job with that so I'm keeping my fingers crossed that this is a better experience and the other guy just had poor bedside manner. Unfortunately, I'm on Medicaid and these surgeons are my only option. Fortunately, they have absolutely fantastic records and reviews from other patients.
Can someone tell me if there are any tests I should absolutely insist on prior to surgery to make sure I (they) know what type of TOS they are dealing with and where, exactly, the compression is? I guess I'm very concerned that they just assume that it's classic TOS when I also have very tight pec minors and feel like I'm being stabbed in the armpit all the time. I don't want to go under the knife 20 times to get this all figured out, I want them to do only what they need to do and get it right the first time! As it is I have bilateral symptoms so I'll have to go at least twice. I want to feel better!
Also, if you feel comfortable, please give me a list of any medications you were prescribed before/during/after surgery so I can do the research on the different meds in regards to breastfeeding. I know every doctor does it differently, I just want to have some sort of idea of what to expect. Thank you in advance! You guys are wonderful.