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Magnate
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Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
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Magnate
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
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Something weird with my mouth...
As many of you know, I have BMS (burning mouth syndrome), believed to be associated with a brain stem lesion from my MS.
I've been battling this burning sensation since mid 2007. It's truly awful. I have to take Clonazepam (Klonopin) and chew peppermint gum to keep my mouth from being a raging fire of pain (like being scaled with hot coffee, worsening as the day progresses).
Today, I noticed an odd taste (at first), then a really odd sensation along the side of my tongue on the right side (where the BMS really did start in my mouth). At first I didn't understand what was going on... it was while making supper that I remarked to hubby, "Oh my gosh, I don't feel burning anymore along my tongue!!!". It's more a numbness with a tiny bit of pin prickly feeling, versus the other side (left) that has the burning mouth thing going full force.
Is this possibly my nerve(s) going into a "healing" process? Or re-wiring around the damaged area? Oh I so, so hope the BMS is going away. I haven't done anything special to help the BMS, just taking my medication regularly. NOW if the BMS goes, I can taper off Clonazepam (oh I so want off these prescription drugs).
Hope everyone's been well. Been SO busy here. January and vacation can't come soon enough!
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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