Quote:
Originally Posted by hopeful
Hi Rich, I live in PA so I really couldn't afford to go out to California. I did look up CIDP and said to my husband the symptoms really do seem to be what I have. My neuro has told me several times though that my reflects are somewhat hyper. I don't know if that would rule out CIDP. What type of specialist gave you the dx?
I agree with you I would not wish this on anyone. I also was shock to learn how many autoimmune disease there actually are.
Thanks,
Kim  |
Hi Kim:
My doctor is a neurologist who specializes in these types of disorders. It has been 9 days since my first of 4 IVIG treatments, which were 4 days in a row. I was told that it could take 1 or 2 weeks to notice a difference. So far, I am not really feeling a difference, but I know that it takes time for the nerves to regenerate if, in fact, my system is not still attacking itself.
I don't know if the fact that your reflexes are good, it would rule out CIDP or not. I don't think these autoimmune disorders are cookie-cutter type dx's. There are just too many unknowns and individual variations. We kind of become experiments to see what medications might work as it relates to our individual symptoms. I will continue to seek alternatives which might be beneficial but not knowing a root cause makes it very difficult. Well, we all have our issues and hopefully one day we will have more answers!