Hi again

Thanks a lot for all the replies! Very helpful.

The reason I spoke about Mayo Minnesota, was that that clinic responded to my request for an appointment at mayos website (I'm currently working on translating all the different reports from German and Danish to English, some of them are full of latin etc. I have accordingly not send them to Mayo yet, and I'm still unsure whether till wait to past in january with the danish top neurologist, with visiting Mayo). I do not really care where in the US, as a trip to the US is long anyway. No one in my family has Ehlers (and I do not really have the symptoms, I do not think the German hospital team did a good job). My uncle does have diabetes, which is why I'm changing my diet in order to see if it can help (I already ate quite healthy, but I saw foodmatters and got inspired).
I did have several vaccines in the past, especially in autumn 2008 when my family was visiting Tanzania: Yellow fewer. hepatitis A+B+C and malarone pills against malaria. No, I do not think I have been tested for b-12 (I have had a lot of different blood tests, no idea if they tested for b12), kind of working out a list of all the stuff I need to ask my doctor about when I make my next appointment. I had checked out the CRPS site beforehand, will do some more research though. I love warmth, dislike cold at my leg. Started taking epsom salt foot baths. I also have had allodynia for years because of a very uncomfortable foot massage. I cannot have people touching my feet, more than very softly. Problem is that the discolouring is mostly present when I wake up and take my socks off for a while - in order to get some air to the feet. In the afternoons the discoluring is not so present, and then the neurologists don’t believe me, despite of my photos. I dont get it, my parents have seen the discoloring many times so it's not like it's my secret . I also have a low amount of white blood cells aka problems in the immune system.

I have had pain related problems in my arms for years. The pain in the right foot and calf started weeks after the arthroscopy in june 2011. After the operation the pain in the knee gradually stopped, suggesting the operation was successful, but then the mentioned areas started to hurt. Actually the new pain first appeared after a session of physiotherapy 14 days after the operation, where I really was pushed to exercise a lot.

There is definitely something wrong in my autonomous nerve system. Whether is one disease or the other, I do not know. I have some trouble understanding how I could suffer only from CRPS as I had other problems for years, before the operation. Yet, the concept CRPS helps explain why the right leg has started being so painful, while the left leg has been much better (before I read about CRPS at Mayo’s website, this was very confusing for me).

Best regards!

PS:I have awoken much earlier than usual these last days, I hope the vitamin
supplements and diet change is slowly starting to work.