Junior Member
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Join Date: Jun 2012
Location: Midwest
Posts: 40
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Junior Member
Join Date: Jun 2012
Location: Midwest
Posts: 40
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don't expect ivig to "kick in" within 1-2 weeks after 1st infusion....it may take longer to "notice" any difference, so be patient even though that's hard to do...I know, I've been there...if ivig will "work" for you, you should be able to tell within 120 days
had my 200gm loading dose (50gm daily x 4 days) in April 2012
50gm "maintenance dose" 3 weeks later....another 50gm 3 weeks after that
it was only AFTER my 6th dose (and 6 weeks after 1st) that I noticed any significant difference
now 15 infusions total later, my sensory "numbness" has decreased by about 50% (subjective) and my grip strength as measured by a hand dynamometer has improved (objective)
I have the CIDP/Madsam variant...aka lewis-sumner syndrome....affects my hands more than my legs...knocking on wood that I will continue to improve
prayers to all who have recently started on ivig (or will be) that it will work for you as well
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