I don't live alone, but my husband would have to stop working if he had to take care of me.

I have a companion with me during the day and my husband or one of my sons is with me during the evenings.

If no one is with me (which rarely happens) I stay in bed or sit in my couch, with my respirator near by. At work I have my respirator on the desk next to me.

I fully depend on others in many daily activities. It was a very hard adjustment for me and those around me, but now it has become our normal life.

I don't think of "what will happen if"...I just try to make the most of every day-for me and for others.