Quote:
Originally Posted by alice md
Hi Dave,
I think that your neurologist's approach of gradually going up with the dose is very wise.
I can understand wanting to feel great fast, but I think that with MG it is much better to slowly feel a little better each day.
When I first met my current neurologist I was surprised at his very slow and gentle (almost homeopathic) approach with every change in medications or even food supplements.
But, for the first time in 6 years, under his care my "crazy" fluctuations and dramatic changes became much less severe and for the first time I experienced a very slow and gradual uphill trend instead of downward slope.
He told me that from his experience with MG he doesn't like dramatic improvements as those are many times followed by quite as dramatic worsening. (at least from my personal experience this is very true).
I think you should just keep on slowly going up, adding 1/2 pill to your dose every few days and after your body has adjusted to the previous dosing. This way you will eventually find the safest and most effective dose.
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Hi Alice, and thanks for your post.
I think he is wise too. Whatever "experimenting" I have done has been very cautious. I understand fully that the main consequence of an overdose is that one's muscles become weaker and too much mestinon can cause breathing difficulties. My experience was the exact opposite of that. I had a sudden and sustained burst of energy. So I doubt very much that two tablets were too much.
On the other hand, I tried it again yesterday and I didn't get that big burst, so now I'm back on my regular schedule until I see my neurologist again. In either case I am worlds better than I was just a few months ago.
It would be so nice if the disease weren't so variable. One day can be much different than the next even on the same dosage of medication. It's almost as hard to learn to manage as is diabetes and insulin.