I'm 57 years old and have lived with CRPS since age 23. It began in the right foot, spread to the left foot, up both legs, to hands, arms, shoulders, sacral and thoracic portions of the torso, etc. Before IvIg, and Iv glutathione too, I took 3,600mg Neurontin(Gabapentin), 120mg Cymbalta, 10mg Methadone, and 2mg Klonopin a day. For about 8 months, I have been taking 20grams intravenous immunoglobulins (Privogen) every 21 days, and, after a saline flush, intravenous glutathione. I had been taking both glutathione and lipoic acid intravenously for about a year and a half.

I started with just lipoid, daily. It helped. Then I added glutathione, which helped much more. It was the IvIg that helped most. Now, I do not take any Methadone. I do not take any Cymbalta. I take .5 Klonopin at bedtime and plan to eliminate that soon. I take 300mg Neurontin morning and noon and 400mg Neurontin at bedtime. I have less pain and more energy. I'm a 'walkie' now - no longer a 'wheelie.' I'm near the end of a process of slowly eliminating all medications. Even though studies have been done showing efficacy of IvIg for CRPS and other autoimmune diseases, more need to be done. More people need to know about the treatment and demand that insurance cover it. In the end, it does not cost more than all the other CRPS 'therapies.' To get this therapy covered is going to take a lot of noise from a lot of people with MS, RA, CRPS, Lupus, Alzheimers and so many other autoimmune diseases. (IvIg was as miraculous for my daughter with MS as it was for me with CRPS). Unfortunately for so many of us, and more of us all the time, IvIg is not something drug companies can patent. So, the money from Big Pharma is behind drugs that don't work and not ever going to support studies of
IvIg for anything.....And just now I see debbiehubb's post below. I'm going to write to her now to ask what insurance she has that pays for IvIg. That is something I have not heard of! Wishing you good healing. ambika