Quote:
Originally Posted by Momofcrpsson
My son has suffered with CRPS in both knees since age 14; he's now 21. We've tried everything, with 10-day ketamine infusion in September being the most recent - all to no avail. His doctor is willing to try the IVIG treatment with him but Nick's hesitant to get his hopes up again only to be dashed by another failed treatment. Do you receive the treatments in the hospital? How long is the infusion? And what, if any, preliminary tests have to be done prior to receiving treatment? Thanks!
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Dear One,
I am elated to hear that you have had success with IvIg treatment. Any safe way to lower or eliminate the pain is a wonderful, precious thing. I am 57 and have lived with CRPS spread throughout my body for 34 years. I've had 20grams of Privogen (a superior Ig brand) given intravenously every 21 days, as well as intravenous glutathione. In a week or two, I expect to be off all pain relieving medications. I used to take 3600mg Neurontin daily, 10mg Methadone daily, 120mg Cymbalta daily, and 2mg Klonopin at bedtime. I also used lots of Lidocaine patches. Now, I do not take Methadone or Cymbalta. I have not used a Lidocaine patch in months. I take 300mg Neurontin in the am and at noon and 400mg Neurontin at bedtime. I take .5 mg of Klonopin at bedtime. By next week, I plan to drop the .5 Klonopin and another 200mg Neurontin. Soon, I expect to be drug free. I'm already scooter and wheelchair free.
I receive treatment at the private clinic of an infectious disease specialist. Before treatment, it is necessary to have a blood test to determine your own Ig levels, as well as Ia and other subclasses of antibodies.
Good luck. I wish you and your son good healing. ambika