Has anyone tried living with venous TOS without a surgery for it? I am interested in hearing from you, what your experience is like. I have had one blood clot presumably as a direct result of venous TOS and doctors kind of think I will have more clots unless I stay on blood thinners for life. My other choice is to opt for first rib resection surgery. They think my right subclavian vein has an external compression at first rib and costoclavicular ligament. Can anyone relate to this? I am only 7 mos post-clot but there is concern the vein, which was completely occluded until they busted out the clot and ballooned it, will re-occlude. Can a person live like that even so? I have some collaterals. Am just wondering if anyone has a similar experience.