4 eyes- thank you very much!! That was a great honest answer...and exactly my concerns! i know someone else who had their ivig suspended (they are not a confirmed diagnosis either)... and they had to go without for five or six months and now have severe disabilities... they really declined during that time.. it freaks me out.. and I of course am super paranoid about insurance trying to "help" me.. as i'm sure they are also trying to decrease their costs!
All the new changes also worry me... I just wish those people understood, if it was them or their family member, they would do whatever it took to get them to be as functional as possible.. that no level of disability is "ok" to not fight for better.. They wanted to obtain my medical records (for me to sign a release), and I am thinking I wont' sign it.... but then I worry if that could harm my case as well!?!?! We have so much stress with this all, them calling added to it!