Quote:
Originally Posted by jana
I agree with Alice MD: Reading your post, I think you shouldn't be working full time.
I'm always shocked by MGers with significant symptoms STILL being able to work!
I continued to work for about a year after diagnosis. During that time, I came home EXHAUSTED and was only able to SIT in the recliner..............falling asleep by about 7 PM. I would stumble to bed and not even turn over during the night. Weekends were also spent RESTING.
One of my favorite docs told me to "Listen to my body!" He was 100% right, IMHO. If you don't pay attention, MG will kick you in the BEhind!!  |
Lesmon, I am so sorry you are going through this. I myself am also very depressed. Having all the symptoms of MG and still no diagnosis or treatment yet. I agree with you that the worst problem is the not knowing when or where the symptoms will suddenly get worse. Last week I was at work and felt good all morning. Then at lunch while reading the news on my computer my head suddenly dropped. When I tried to stand up after lunch, I could hardly move my legs. That is the worse I have ever been.
Jana, your situation sounds exactly like mine now. I go in to work early and get out early so sometimes I am even asleep in the recliner by 5 pm. Often, I am so exhausted, I have to fall asleep for a few hours so I have enough strength to climb the stairs to go to bed. I keep thinking "How long can I keep this up?" I have 6 years until I can take early retirement. But I am too afraid of the financial consequences to think about disability and they have not even definitively diagnosed MG yet. I do not want to lose my home.
kathie