|
Member
|
|
Join Date: Aug 2010
Location: South Carolina
Posts: 714
|
|
Member
Join Date: Aug 2010
Location: South Carolina
Posts: 714
|
I went through 3 or 4 neuros before I found the 2 I currently see. One is local who I see every 3 months, the other is 45 minutes away and see every 6 months. The one I see every 6 months is the "expert". He was on the team that discovered some of the first antibodies. The 2 doctors confer on my case and work together very well. The "expert" does the full MG panel each time I visit.
My blood work has gone like this. First test negative, 2nd positive for binding,
3rd positive for binding, 4th positive for, Binding, Modulating, Anti-striated muscle, can't remember the 4th. I have a panel that was just done but haven't gotten the results. My Dr was in Chicago for a conference. I'm going to try to get them today. He did another panel my last visit because I was doing so well. He was curious as to what my results would show. He said my case was the most complicated he had seen.
They haven't changed my meds in 6 months because I am doing pretty good. I currently take Mestinon, Prednisone and Cellcept. We stopped my IVIG.
Mike
|