Try to look at it this way, Emily......he has given you an advanced preview of what you can expect from married life with him.
Hopefully, your docs will be able to attack this RSD monster in the early stages with success. If you are that lucky, and your relationship starts to improve because both of you are able to focus only on fulfilling his needs.......don't forget this stage of your relationship. If he's not there for you now, he's telling you not to expect him to be there for you in the future.
You deserve better. We all do