Hello,

My neuro psyc has had me doing an hourly symptom intensity tracker (0-10 scale) and also to record what I am doing all day long to see what makes me worse, etc. I have been doing this for about a month or so. She says the point is to learn to judge when I need to stop and when I can press forward with activities.

The downside of these journals though is that it makes you pay more attention to your symptoms, which could make them seem worse. She says it's probably time to stop doing the hourly tracking.

I'm very stuck in the "routine" now of doing this journal and I feel that in one way it is still helping... I have a strange problem of having one good day and thinking (and telling people) that I'm getting better. This can be bad when you're talking to disability insurance people or doctors especially because I'm not getting better it's just one day. The journal helps to show me that I'm not getting better or it also shows that I actually have slightly improved in the past month but I'm still not "better"

Do you keep journals? What kinds of things do you keep track of and do you do it hourly/daily/weekly?

Oh, the other thing she had me record daily was three things I'm grateful for that day. This can be a tough one when you are home alone and do nothing all day! Especially because you can't repeat the same thing over and over. I seem to be most grateful for other people helping me with things and for my cat

I've told her all about you guys and this group and so my "homework" for the week was to find out what you all do with your journals.

Thanks and I hope you're having a good day!