Quote:
Originally Posted by Anacrusis
A different doctor and a different approach really helped....
My own doctor has been away and has a sub. I thought I would see if that could be used to my advantage and booked a new appointment.
I briefly described symptoms from my last flight, said it had happened on 3 different occasions but not whilst under the influence of Mestinon.
I then produced a copy of pulmonary tests for MG that Alice had described in another thread, patted them down on the doctor´s desk and stated:
´These are the tests that need to be done - I personally have no idea what these tests are, do you know how this can be organized?´
The appointment took all of 5 minutes.....
Have felt so well lately though that right now I wonder if the tests would only pick up something if there were triggers like antibiotics,
sedatives, being on board an aircraft, or overusing my vocal chords & muscles.
Normal tests are also a good starting reference point with any future exacerbations...
Either way  |
Normal tests that correlate with feeling good is the best thing you can hope for
Normal tests are only a problem if you are not feeling well.
And yes, it is very helpful to know your normal, so that there is something to compare to, if you ever do less well in the future. It is also good to have someone that knows you and your normal which you can rely on, if things deteriorate.