hello all,
my name is erica, im 29, diagnosed with mg in july this yr and seeking advice on thymectomy. i've done as much research as a person can on the internet, spoken with a surgeon, my neurologist says its my best option for a chance at full remission (eventually). i've been reading posts and i kinda feel a bit guilty..I have acute generalized mg, over the summer my eyes, legs and both arms were weak, but it mostly effects my right arm and eyes constantly.
i can't see straight past 3 ft in front of me and i can barely lift my arm to brush my hair or open a cabinet. i work in a hospital lab, in the microbiology department as well so i refused immunosuppressant therapy, and no steroids. reading up on those drugs-i just can't deal with any more drug side-effects i take meds for bipolar and fibromyalgia and muscle spasms. i take mestinon as well. it works,then stops working. i take 60 2x's in the morning and 4 more every 3 or 4 hrs after-6 total. when i'm feeling better i take less. then sometimes its out of control and mestinon does nothing at all. i did IVIG in november and the 3rd day got a massive brain/headache so my neurologist told me to stop. i noticed a difference, then decline and the talks about thymectomy came around. they scheduled me 2 wks later and i freaked out and cancelled. I cant live like this though, im a single mom, i work full time... is acute generalized a good candidate for the surgery? i wish i could talk with someone who's gone through it and knows if it's worth it. -conflicted