Thanks so much for all of your replies, they really mean a lot to me
Sorry that it took so long for me to respond back. Nanc, I am so sorry that yours has spread again as well, and I hope you're able to figure something out to help the pain
I finished the semester of grad school on Thursday, so I now have a lot more free time these next couple weeks! Truly though, I feel so blessed to be in this program, because I know it's exactly where I'm supposed to be and I know that this career path is exactly the right one for me, and it's such a peaceful feeling to know that.
I did go forward with the bier blocks, I'm having my 6th and final one on Friday, and then I don't know what's going to happen after that, if anything. These blocks are lasting longer than any other blocks I've had before, which is very encouraging on the one hand, but on the other hand, this latest one still just lasted 37 hours and then the pain came back to how it was. The RSD has also spread to the bottom of my left foot as well as the ankle, which has been difficult especially with the allodynia, because all surfaces touching the bottom of my foot drive my crazy with pain. I also started back to physical therapy again last week for this, so I'm hoping that will help some with the pain.
My SCS's are both giving me trouble at the same time right now, though, as luck would have it. Remember back in June when my stimulation was cutting in and out and shocking me in my legs? That's happening again. I'm not too worried as my rep was able to easily fix it the last time as it was probably scar tissue that broke free, but I hope there will be enough good contact points left to get the coverage I need after having to work around 2 spots now.
Then my cervical SCS was on 1 bar so I charged it. After about 2 hours of charging it now cannot even turn on at all because the battery went low. I don't understand how it went down? So wish me luck as I try charging it again tonight, and hopefully it'll work this time.
Ahhhh the adventures of having stimulators, right?
