Grand Magnate
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Join Date: Feb 2009
Posts: 3,306
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Grand Magnate
Join Date: Feb 2009
Posts: 3,306
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Kathie, Well, that really stinks having to wait so long. If it ends up that the MuSK isn't positive, do not despair! That doesn't mean you don't have MG.
A lot of the "new" MG antibodies don't have a test for them yet. And you might end up having a positive antibody down the road. They do tend to wax and wane.
Mike, If I were you, I'd have my primary doc check for the possibility of a tumor. It doesn't mean that's what is causing your antibodies to increase though. And, as you know, an increase doesn't necessarily mean a worse MG clinical picture.
Mike, let me ask, do you get any vaccines on a regular basis? The Squalene in vaccines can supercharge ANY immune response. I can't remember, have you seen an immunologist? I hope they can figure out what's going on.
Annie
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