Sorry to hear that Deb.

Regarding the job.....unfortunately, this time comes during the course of many chronic conditions as physical symptoms increase and partial to total disability becomes our reality. You can only manage working as long as you can manage your symptoms.......some of that is due to your own mental determination, but most is due to the course of the condition and the medical management. A lot about the course of your condition IS out of your control. That stinks......for all of us. All you can do is try to manage the parts that you DO have some control over as best you can. That means keeping yourself motivated to accomplish what you can.......and make sure you are maximizing your potential by having a medical team also committed to helping you manage your symptoms so you can be as functional as possible.

So........regarding your medical team........I think you can see where this is going.......I think you need to make some changes ! I know that's not always easy to do. Quite frankly, I've been procrastinating on making some changes with my own team. When my body feels like crapola, I don't feel like dealing with those issues. When my body actually feels decent, I want to do something that involves enjoying life.......not making phone calls to find a new PCP, having to travel further away for each appt, having to go through my whole medical history, trying to not look like I am switching doctors frequently when, infact, I am.....the list goes on. I understand not wanting to make the efforts to find a better medical team (which would help in the long run) when in the short term it means more stress on you, more effort from you, and possibly more disappointment. Still.....it should be done if you don't feel like your team understands you and is trying to help.