Thread: End of the road
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Old 12-19-2012, 05:22 AM
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Join Date: Oct 2012
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10 yr Member
wild_cat wild_cat is offline
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Join Date: Oct 2012
Posts: 84
10 yr Member
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Thank you very much for all your responses.

Alice, this link has been very helpful, thank you. I am going to try this paleolithic diet. I will cut out all grains (oats, rice, wheat and corn products), dairy and sugar, including fruit, which seems to be a big culprit in setting off the muscle hyperactivity. Can you advise me of how I can replace the carbohydrate component of my diet? I really want to try not lose any more weight. I have a great book here called The Food Doctor but it doesn't talk about meats or fish in there. Are there any fish or meat I should avoid?

Annie, I absolutely do not believe my condition is a due to a psychiatric issue. I do live in a remote place with limited access to medical help. I need a referral from my GP to be able to see any specialist or visit any clinic. He does not believe my symptoms are psychiatric but says we've done all the tests and there's nothing more they can do. It was him that suspected MG and made the neuro referral, I never suggested to anyone that's what I thought I had, that's what was suggested to me. I have had the diarrhea for six days now. It does seem to come on after eating. I've never been so intolerant to things before, quite the opposite. They didn't do an arterial blood gas but they did check my oxygen saturation, which was normal. I will get the result of this test and the EMG report via the neuro once he has looked at it. I saw my GP last week when all this first started and he said it's up for the neuro to decide, help and test as necessary. I'm not sure how far I would get to go and see him again...

I'm sorry your had this experience too, Bny. I felt so ill the last week the only way I could reassure myself was to tell myself it was my imagination, even though I don't believe that. I'm very frightened I'm going down hill, down down down. My eyes took ten minutes to focus (un-blur) when I got up this morning. I don't enjoy not being able to see well like this. I completely agree about the chicken-egg scenario – why don't they ever ask? Yesterday I ate a banana, and within half an hour I suddenly felt extremely angry, at the brink of despair and then elated all in the space of 45 minutes. My muscles became so hyperactive I felt I had super-human strength and that I could tear up the house with one hand. Then after an hour and a half or so I go back to not being able to even walk across the room and being very weak again. It's very confusing and distressing. It's not my feeling a certain way and then getting the symptoms. It's just I'm not in control of it at all and it's not normal!!! The suddeness of these emotional changes, particularly because they happen in a room on my own, with no external trigger, while I'm minding my own business trying to write an article, make me certain it's not due to anxiety. Well, I'm glad they will admit me, but as they won't even repeat any tests, let alone do new ones, I'm not sure I see what the point is or even why they offered to do it, other than to get me to stop asking awkward questions and leave the office...

I'm staying off researching anything now. I have no clue or way of telling what's wrong with me. I have no experience and no qualification to lead me to a diagnosis. I just have to work at the base level and experiment with things and see what I can find to work.
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