Hi Reblette,

You must read on through these forums, as what your doctor says seems to contradict what many of us are aware of. You really need to start with a TOS specialist as many doctors know of the condition but don't know it well. There are threads on this board that indicate different doctors in different areas.

Just so you know, many tests for TOS are not conclusive. Many of us had gone through 5-6 doctors before we found the doctors who truly know the syndrome. If you are in the Northeast, Dr. Donahue at Mass General is one of the best discussed on this thread, and I can't say enough positive about him.