Dawn, I can hear your frustration and understand it. Its something made worse for me since it seems like my husband simply can not understand it and therefore it FEELS like he thinks I am crazy. Then it also seems the more anxious, upset or stressed I get, it seems to also worsen my symptoms.
I was shopping at the mall yesterday and I almost ALWAYS wear slip on shoes so I have access to my feet and all of a sudden they burned and hurt so bad. My husband thought I was crazy cuz I slipped off my shoes while standing in line at register, but the small act of slipping them off helps so much because the floor was so cold. I had socks on.
I try not to get too stressed and stay calm since I firmly believe it aggravates it.
Good luck Dawn, take deep breaths and hope for the best.