Thread: Dystonia?
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Old 12-20-2012, 05:22 AM
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ianacoustic ianacoustic is offline
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Location: Australia
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ianacoustic ianacoustic is offline
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Join Date: Dec 2012
Location: Australia
Posts: 7
10 yr Member
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Quote:
Originally Posted by ianacoustic View Post
Hi ali12,
Many doctor's are unfamiliar with movement disorders and some have never heard of dystonia. My wife had a doctor who reported that it was pyscho-somatic - "all in her head", it isn't and balance can be an issue. My wife suffers with dystonia (which took 18 mths for a neuroloigist to define) after she had an attack in his office. But she does suffer form unsteady balane and a couple of days ago while we were shopping she was quite tired and she found she couldn't walk where she wanted to go and involuntarily walked off to one side instead of straight ahead. So, it is NOT in your head and we only found specialist knowledge after going to a neurologist who specialised in Movement Disorders. Not all do and the one's that don't are not worth your time. We understand your frustration.

Best to you, ianacoustic.
By the way my wife's case, there is no family history etc of dystonia and as a result of a car accident, it has been attributed to "post accident TRAUMA. I see you sprained your ankle, i don't know how bad that was, but if there is no family history start looking on the net for trauma induced dystonia - it does exist! :-)
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