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Junior Member
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Join Date: Apr 2009
Location: shiloh, tn
Posts: 91
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Junior Member
Join Date: Apr 2009
Location: shiloh, tn
Posts: 91
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Anacrusis, yes I concur that those of us with resp pblms do get this severity of weakness & possible dypsnea when flying.....can be very scary....I sure did quite often, not just flying but also when just going out to barn to feed my horses, & come back hardly able to walk or breathe.....& no tests for me then, testing is never done when we are in situations; make an app't, go in, sit & wait, then called in to see Dr...yeah right!! they seldom see us in a crisis.......
& yes, after that grand canyon flight, sure was concerned bout my physical being after the flight...had never had such an extreme reactional weakness & feeling of immobility before...always wondered if it being that small plane with those huge vertical windows had anything to do with it..or pressure pblms...didn't know 'til the dx was finally concluded! As I said before "hindsight really is 20:20".....
It certainly is difficult to deal with this disease, ppl do not understand if they do not actually see it happen....
Looking back, I bet that river rafting was one memorable trip....I felt that way going down the canyon on mules....had fun then.....
Hope you have a good weekend/holiday
Dottie
Quote:
Originally Posted by Anacrusis
Dottie,
So Iīm assuming only people with respiratory MG problems get exacerbated weakness from flying, do you think that is about right?
Iīve flown with general weakness and didnīt notice a thing until it had spread and begun to affect diaphragm weakness................
Do you think like Annie says, once you are on the ground later on, things donīt necessarily show on the tests, or are you in fact saying that you got pulmonary testing immediately after the flight that affected you so much?.................
Yes I should know about trying hard enough!!! Iīm the one that river rafted 21 days down that majestic Grand Canyon and a few years later could not even stir a casserole! Wouldnīt that just be a new thread full of fine examples of how people have been told just to try that little bit harder?!!!..........
You mentioned not being able to get up from your seat on this flight and being embarrassed, would you say then that you were mostly concerned about the physical effects on your body after taking this flight?
Anacrusis
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