Hello,
My daughter has full blown RSD head to toe. She just saw a dr at Drexel in Phila who wants to put her in a 5 day coma in a South American Country. Insurance will not cover. It took 3 years to get this appt, (was orginally for me, I was misdiagnosed with RSD for 10 years. My RSD was really Chairi.)

My daughter has been ill since middle school and is now in college. She needs relief. S/S: full body pan, rash, mottled skin, feet bluish, cold extremities, headache nonstop for at least 5 years. She has been to the "best". One dr at NY Presby said she will never be able to work FT nor would she be able to go to college. NEED ANSWERS.