I'm glad that you aren't angry with me.

I agree that there is a gross lack of even basic knowledge about CRPS amongst those in the UK who would regard themselves as the "experts". It is astonishing but, sadly, also my experience, that in the whole of the UK, there is nobody who has up to date, accurate or comprehensive knowledge of the condition. The total apathy and complete lack of interest is even worse.

It is a situation that made me very frustrated and also angry for a long time, especially after going abroad to see genuine experts with the very latest research information and an active interest in the condition. However, going abroad gave at least me the vindication that I was right all along about my condition and the particular symptom profile I have. It also confirmed that I had already tried all of the possible therapies available in the UK. Finally, it confirmed what I believed I already knew, namely that there is actually nothing else available even outside of the UK that could help with my particular CRPS symptom profile.

The frustration and anger only serves to increase the pain and severity of my symptoms so I have largely learned to let it go. That way I can better manage my condition day to day. I don't know what the answer is for you. If you are determined to campaign for better knowledge and treatment, I hope you are able to find a way to energise yourself whilst shedding the anger since that, more than anything else, will increase the severity of your symptoms and make life feel so much more hopeless.