Quote:
Originally Posted by yellow
Neurochic has a wonderful and so well-worded reply that included what I was going to say and more. But I just want to say that I realize how desperate you must be seeing your daughter going through all that she is, and I really hope you can find something that works well for her. There are people that these comas have worked for and people who have had devastating results as well. It is a decision that has to be yours and your daughter's as well as the doctor's and I wish you the best of luck in making it 
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Yellow,
Thanks for your input. I am just sick to my stomach as I am sure all of you have felt as you have gone through this. Myself and others have taken her to "the best" for a diagnosis. I felt there was something else wrong since he also has a bleeding disorder. It was CHOP in Phila who Diagnosed her.
I keep telling myself it's RSD and she has the "best" dr. I have encouraged my daughter to speak to DR Schw. again for other treatments vs coma.
THANK YOU ALL FOR YOUR TIME AND PATIENCE.