Quote:
Originally Posted by reynolds_km
I made my call. this time I was listened to.
I wonder if making a Facebook page asking Sanofi to save Mytelase for the few patients who need it might help. I worry about the elderly people who take it and are not wired enough to get help with their drug being taken away.
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Glad you were listened to! Can you tell us more about the call and what came out of it?
I agree that creating an online advocacy group ** is a good idea. In the meantime, let's continue to be active in this forum to share information.
Maybe we can submit a group request to the Myasthenia Gravis Foundation to act on our behalf. Maybe there is some legal remedy we can take with their help to insure our access to this necessary medication.
Let's keep working together here and pushing forward!