Thread: Mytelase discontinued in US
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Old 12-24-2012, 09:06 PM
Mytelase_Alliance Mytelase_Alliance is offline
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Join Date: Dec 2012
Posts: 6
10 yr Member
Mytelase_Alliance Mytelase_Alliance is offline
Junior Member
 
Join Date: Dec 2012
Posts: 6
10 yr Member
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Quote:
Originally Posted by sorrentome View Post
I contacted the National MG Foundation today to see if they had made any response to Sanofi regarding the discontinuance of Mytelase. They have made no response and indicated that they have not heard from any Mytelase users expressing concern about the discontinuance. They took my information and noted my concern. I would urge other Mytelase users to call the foundation amd make their voices heard. Their phone number is 800-541-5454. I would also suggest that if you belong to a local MG Chapter to ask them to lend their support by contacting the National Foundation on our behalf.
Great effort! Let's think about forming a group to contact Myasthenia Gravis foundation together. It seems that they should take our requests seriously regarding the Mytelase discontinuance and act on our collective behalf to address maintaining access to this necessary MG drug.
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