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Originally Posted by cactusfoot
I am wondering what steps toward diagnosing crps/rsd are advisable. Have been working toward a diagnosis on my ankle and foot pain through what appears to be just an endless set of hoops to jump through over the last few years. Is my insurance to blame or am I using the wrong language? My surgeon wants to do more surgeries, would be my 7th in that area if I did. My neurologist said to me "nobody is going to diagnose your problems because your insurance won't pay for it." He wrote me a referral for physical therapy that I think will help me to get back to being more mobile again, but he recently switched to a private practice so is unable to get prior auth through the insurance at this time. Before he switched the referral for PT he gave me was to a doc that didn't take my insurance.
My PCP seems to care but hardly ever says a word in our meetings and after she leaves the room I get a new referral. I will see my PCP early next month and hopefully at that time get a referral for PT that is validated and once I start that they will have to say why there is so much pain in the ankle and foot, I think.
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Hi cactus foot, It sounds like you have NOT been officially diagnosed with RSD? Is that right? It was an orthopedic Dr. that officially diagnosed me-a few years after my rsd following surgery. Neurologists and Rheumatologists also are familiar with this disorder. All the information I've read is, surgery on a RSD patient can and often does cause further damage and spread. Hope you get some answers soon. Physical therapy helped me regain the use of my shoulder (for frozen shoulder) really RSD and also PT helped after it spread to hands and caused frozen hands. Take care and keep trying for a diagnosis. How is your pain level?How is your mobility in your foot? your friend, loretta