Annie, you are right! I am in the UK, in a remote area, so limited in terms of what medical assistance I can access. I'm worried about printing things from the internet to send to my GP. I fear he may tell me I'm spending too much time on the internet!

I know that I did have slightly low calcium levels when all my symptoms started three years ago. The limits was 2.10-2.60mmol/L and mine was 2.09. It seems fractionally low. They redid the basic blood work in June and this showed normal results, though I was feeling much better then. I asked them to retake it recently when I became bad again and got the new symptoms, but as they were normal in June they don't feel taking another is appropriate.

I find it slightly concerning that since I have this 'unknown' condition, anything else that comes up, however wildly divergent from my normal symptoms, gets lumped into the same category. The fact that they haven't even attempted to assess these new symptoms is quite shocking, I find.

Can these levels fluctuate and affect level of symptoms?