Hi

Wild Cat I am in the UK as well and understand the problems.

Is there any way you could change GP surgeries? I had to change my GP as he told me all my symptoms were in my head (because the neurologist said so) but offered no psychiatrist or treatment to resolve my mental health issues. When I told him I knew what was wrong with me - postural orthostatic tachycardia syndrome and Ehlers Danlos Syndrome I was told it was normal for your heart rate to increase by over 30 bpm when standing and I couldnt have EDS as it was too rare. I had also been told no more tests.

At this point I realised I could continue with no treatment, understanding or name for my condition or I could change to a different GP surgery. I was lucky I went onto an EDS forum and found a lady who lived in the same town I did who told me of a GP who knew and understood EDS and POTS. I moved got the tests and never looked back.

How about finding out if there is a UK forum for people with Endo problems or / parathyroid issues (yahoo groups maybe a good place to start) and see if anyone knows of a good gp or endo consultant in your area?

In the past I have contacted consultants directly and some will be naughty and see you privately without a referral if you could afford to do that? looking at £350 without any blood tests etc.

I hope this helps

Rach