Hi Cactusfoot, sounds like you have been thru the mill and back. Constant pain is so hard to deal with. Your foot looks terribly painful and swollen. Like I mentioned before, I had RSD for 5 years before being diagnosed. I knew something was really wrong and I needed to get to a different Dr. I actually travelled across the country to a sport injury group (orthopedics) that specialized in athletes. (Eugene, Oregon) where Nike was founded and the summer olympic running trials were done) When the Dr. walked in the room and looked at my hand, he said he was afraid it might be RSD.Was sent for nuclear med. (DYE) tests. Once the RSD was confirmed, he started me on physical therapy, because I had NO motion or use of fingers etc. Came back to Arizona and saw a neurologist who did further studies and confirmed and then saw orthopedic specialist who confirmed it and continued the PT and got partial use of fingers, enough to type but not curl fingers to palm. Grateful for the use I have- A tens unit also helped me in the earlier painful times with the hand. That was ordered by the Oregon Dr. When my Rsd continuted to spread saw two more neurologists who confirmed it was RSD, but unable to stop the spread.
On a note of encouragement, although I have full body RSD, the electric shocks, uncontrollable spasms, have stopped!. I think Neurotin and Lyrica may have helped in that.
I don't know where you live, but my feelings are that if you feel you have RSD, a good sports injury group, may be a good starting point. Professional basketball, football, baseball, hockey, runners, all have good team doctors. Those groups have Drs. that specialize in the foot, or hand, or knee etc. I have called groups up before and asked if they have a dr. knowledeable in RSD. Neurologists, aneseaologists ( who do the nerve blocks) the same way some may have knowledge of RSD. Pain Management centers?
If you post your state or area where you live, you may get some referrals from board members who go to a RSD Dr. in your area. I know how frustrating it is that so few Drs. even know what this condition is or how to go about treating us. Hang in there- Hope you can get some relief soon. Can you even put any weight down on that foot? Glad you are posting- loretta