"Where was you biopsy taken from. Also were your samples sent to therapath labs in new york (this is where mine were sent). "

Thank you very much for your helpful response. Yes, the samples were sent to Therapath. On their website I see they provide a video for physicians, and two or three minutes into the 5 minute video they show how the locations are mapped out. Watching that video (which I did this afternoon) confirmed my impression that the person who did mine did it incorrectly (I had other reasons for doubting already). Clearly this video is there so doctors can learn to do the biopsies properly (which is great for patients who don't live near a major medical center where it might be more standard practice already). The procedure is illustrated very clearly. In the video they actually use a measuring tape to get to the correct areas for the samples.

When you say you had one from the ankle, how close to the actual ankle? For Therapath it looked like on the foot itself was an option, otherwise it would be on the calf (which they referred to as "distal leg" -about 10 cm above the ankle). Did you actually get one done in front of or behind the ankle bone (and really close to the ankle)? That would be interesting to know if you did, and also to know how they classified it (distal leg? or foot?)

I really would like to know how precise these locations need to be for the results to be valid. Maybe if yours was really close to the ankle and yet was classified as "distal leg"-- but still ok by you and your neurologist -- then maybe my sample would be ok in terms of location. Mine was at least several inches from what would seem to be the target according to that Therapath physician instructional video.

Sorry for asking and thanks very much for having responded already and having shared your experience (including that it was therapath).

Take care and happy new year!