Originally Posted by KJARVIS

Hi, I was in Spain when the first symptom of double vision occurred. I have no idea if this is related, but my air conditioning packed in and I suffered some seriously high night time temperatures. During this time I had difficulty focusing when using my computer and later I experienced slight double vision for only a few seconds.

I then went to China where the double vision worsened. I noticed a slight distortion in my right when reading, as though the word in the centre appeared to be written on an invisible football, so I had my eyes tested and photographed - "Your eyes are perfect" they said. I was ushered to a neurologist who set me on a course of tests: blood, muscle, MRI and Cat scan for the Thymus, - All negative! By this time my eyelid had dropped, first on the left and then on the right eye. Then I was given my last test: Mestinon injection and sure enough after 20 minutes or so mu double vision almost disappeared for about five minutes and my droopy eyelid ascended.

I was given Mestinon tablets and told to take 120mg x 3 times a day. After trying this out for nearly 2 weeks, I find that it only helps me if I take the 120 mg in the morning and go back to sleep for one hour. After waking again I have good vision for only one and half hours, but my droopy eyelid is up where it should be all the time.

I am now in the UK, where I'm sure the doctors would still prefer to be using leeches and aunt Bessie's remedy, where I am told they could not offer me any solution or recommendation for my symptoms, or how I should be taking the Mestinon.

Can anyone shed light on whether they think I do have MG, should I be taking Mestinon and if so how much? I notice that most people on the site here take very little. so I am simply confused by the information I have read and what the Chinese specialist told me. Thanks.