My experimenting with my diet over the last two weeks certainly points to the fact that it is affected by insulin response, though whether it is caused by that or merely exacerbated is another question...

I am finding that no carbohydrate and no sugars means clear speech, a feeling of lightness in my legs that I have not felt for years, a much improved ability to stand (up to seven minutes rather than 30 seconds, a miracle!), and general ease of activities. The problem certainly doesn't go away by keeping this diet but it is noticeably improved.

However, it hasn't gone away. There are still residual walking difficulties and limits on how long I can stand up for or speak.

I find a small amount of sugar gives a good effect -- i.e. improved ability to walk and speak. But I am finding any form of carbohydrate, potatoes, bread etc to cause me to become unintelligible and completely unable to walk within 15-20 minutes of eating. This gradually improves until my speech is back to normal 45mins-1hr symptoms begin with residual effects lasting anywhere from 3 hours upwards depending on quantity etc.

I am losing a lot of weight on this diet and feel terribly depleted, but I will do anything to avoid having another sugar-induced seizure. I'm keeping it clean and trying out one item at a time with a 24-36hr gap either side and keeping a diary for my hospital admission on 15th Jan. Lets hope they listen!