Quote:
Originally Posted by 4-eyes
We are almost like sisters and haven't let a 1700 mile distance come between us........
My firend and I have spent thousands of hours instant messaging over the years and most of the time we never even mention MG, but when we do, we have instant understanding and support.......
I hope everyone takes the time to try and meet others walking the same path--whether it's in person or online. Use the PM features of this site and get to know one another. It can make a world of difference.
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That is
truly wonderful (it sounds like my
real sister
)
And great advice too
We also covered many topics and just launched in there & discussed life stories that somehow rarely even get discussed with other friends.
This was a transatlantic one-off meet - but Iīll surely treasure it for ever
Quote:
Originally Posted by Alan53
Sadly I've not had that support with the medical side which has been the hardest part of coping with my symptoms I would say meeting others in person is a very important way of dealing with a ever changing MG symptoms.
Alan
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So true Alan
In one way for me, immediately recognizing the symptoms of the other person at the meeting also gave me some sort of validation
during 5 years of non-diagnosis, that Yes, itīs either MG or
nothing!