I have a question for yall, my ivig schedule has been off with the holidays and all, and I have been going longer than my normal 2 weeks in between infusions.. with the business of the holidays plus that I am having a bit of an exacerbation.. everything is becoming "floppy again" eyes are drooping way in my way, double vision etc.. but the worst is the breathing.... I can still talk and read to my kids without being short of breath (like i was when i was admitted a little over a year ago), but I'm still short of breath, especially at night..
When at rest or lying flat sleeping, it's like I don't inhale enough.. with MG is it usually exhaling or inhaling that is more bothersome?? Once I rest even for ten minutes everything improves again. I am thinking I may need to go get another loading dose of IVIG or something soon, as this is worrying me!