View Single Post
Old 01-04-2013, 09:11 PM
Neurochic Neurochic is offline
Member
 
Join Date: Sep 2011
Posts: 246
10 yr Member
Neurochic Neurochic is offline
Member
 
Join Date: Sep 2011
Posts: 246
10 yr Member
Default

Hi

As you clearly realise, it's pretty much impossible for anyone to tell you whether your diagnosis is correct or not. Not everyone has the same severity of symptoms with CRPS though. Whether you have acute or chronic CRPS isn't typically the determining factor for severity. It is possible for some/all of the symptoms to stay the same, improve or worsen over time - just to make it really difficult!

You don't say what type of doctor has already diagnosed you nor how they went about that diagnosis so its impossible to know whether their opinion is likely to be credible or not.

However, there are strict diagnostic criteria which have to be followed and all other possible causes of symptoms have to be excluded for CRPS to be legitimately diagnosed. You can find details of the latest version of these diagnostic criteria on the RSDSA website. It is a US organisation that raises awareness and provides information about the condition and, unlike so many other web sources, their info can be trusted in the main to be reasonably reliable and up to date.

Any specialist you see should be familiar with the International Association for the Study of Pain diagnostic criteria and should apply them, they shouldn't just say its CRPS because they don't really know what is wrong! All of the clinical signs and symptoms present in CRPS are also found in other conditions so it takes skill and knowledge to get a diagnosis correct, especially if the symptoms are not very obvious. Orthopaedic surgeons are typically not very good at recognising and diagnosing CRPS but pain management specialists and neurologists (with the relevant experience) are generally rather better at it.

I think you will find that the people who post here are posting precisely because they have more severe symptoms, people who have much milder symptoms are less likely to feel the need for any support. They will likely just be getting on with life and managing to get along without the need to reach out to other people who are in the same boat.

It makes sense proceed with your planned course of action and seek further opinions. Meantime, the best thing you can do is keep your leg moving, ensure you are working on your PT rehab activities especially including weight bearing activity and keep touching any painful or sensitive areas to avoid them becoming over-sensitive. Even if you are ultimately diagnosed with CRPS, it may fade away into remission if you just persevere with the PT and walking rehab. No doubt you will be back to let us know what the further opinions are when you get them.
Neurochic is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
finz (01-07-2013)