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Old 01-05-2013, 12:19 AM
tikiberry tikiberry is offline
New Member
 
Join Date: Jan 2013
Posts: 2
10 yr Member
tikiberry tikiberry is offline
New Member
 
Join Date: Jan 2013
Posts: 2
10 yr Member
Confused Hi ya'll

Hello group. I am Kitty Berry, southern girl transplanted to DC via my Air Force husband. We have a sweet 11 year old daughter with a myriad of health issues that are a mystery. 4 years ago she started experiencing internal tremors that made her just crazy. We finally found a Neurologist that started her on Requip that managed the tremors. We thought we were home free. Fast forward 2 years and relentless global sharp shooting pain hits. She has to be hospitalized for Ketamine infusions to get it under control. Now she has pins and needles anytime she experiences temperature changes anywhere on her body. She does have Type 1 diabetes. A muscle biopsy showed Type 1 muscle fiber hypotrophy, she has 2 unknown Mitochondrial mutations, white matter changes on her MRI, 2 normal EMGs, and now a normal skin biopsy. The Neuro today told me she is Psychosomatic. Needless to say it ticked me off. Just because she is difficult to diagnose doesn't mean she is crazy. We are so desperate for help.
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"Thanks for this!" says:
ANNagain (01-05-2013), SallyC (01-05-2013)