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Old 01-05-2013, 04:39 AM
medicalmystery7 medicalmystery7 is offline
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Join Date: Apr 2012
Posts: 41
10 yr Member
medicalmystery7 medicalmystery7 is offline
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Join Date: Apr 2012
Posts: 41
10 yr Member
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Quote:
Originally Posted by IceSkate View Post
Have you tried getting a second opinion about the brain scan? I don't know anything about brain scans myself, but if it was me I would want a second opinion about that white area.

I have had some of the same symptoms you have. I experienced numbness in my entire body for a few days, then I lost my sense of taste for 2 months. Around this time, I had severe stomach pains and lightheartedness.

I have hypothyroidism, but it has been treated successfully and I don't think it could cause these problems since my thyroid levels are normal.

I had an MRI and they said nothing was there. They told me it was anxiety, but I actually think I have less stress/anxiety that the average person.

So I don't know what is going on. The reason your post attracted me was the lost of taste. Was it an entire lost of taste. This is called ageusia. Or was it partial? Mine was entire.

Did the doctors say anything about your taste issues? They had no idea for me.
Hi,
No I haven't sought out another opinion because it was already a giant hassle to get the opinions I've gotten. My first neurologist did a CT scan, said he saw some cerebral atrophy on it but it was nothing to worry about, and that was really all he had to tell me.

So I asked my GP if I could have a referral to another neurologist, and she didn't want to because she thinks it's all anxiety. She did, though, and it turned out the neurologist I requested to see (I wanted a woman this time since it seems like all the male doctors just dismiss me as a hypochondriacal young woman) didn't have any openings for months. I asked the neurology group if they had someone else I could see instead, and they had me see my current neurologist in a month. After seeing him the first time, I didn't get to see him again for another two months, and then now I don't see him for another six months. Neurologists around here just don't have a lot of availability. I'm pretty certain my GP will attempt to admit me to a psychiatric ward if I ask for a referral to ANOTHER neurologist because she already has a very eye-rolly attitude toward me when I tell her I still think there's something wrong with me. The other issue is I share a car with my sister, and she gets really mad at me when I take it to doctor's visits because it means she can't use it to go see her boyfriend or whatever until I get back, and I'm tired of all of the tension it causes between us, so I hesitate to schedule even more appointments with more doctors even if my GP would let me.

As for the taste stuff, it's kind of hard to explain. One day at lunch, I put a chicken finger in my mouth and noticed it tasted like nothing at all. I tried the macaroni, and same story. I thought the school lunch was just really bland that day, but then when I got home, I tried eating some hot candy, and I couldn't taste it either. Then over the course of the next about 3 years, my sense of taste sort of came and went. It was never normal, but sometimes I could taste certain tastes like I could tell if something had a lot of salt on it. I think sometimes I just thought I could sort of taste certain foods because I was still able to smell them, if that makes any sense. It was a really diminished sense of taste at best, though. If I were eating spoiled food, I wouldn't be able to tell that it was bad. I don't know how else to describe it. My sense of taste has returned a good bit, but I still don't think it's 100% normal, and it does stop working sometimes still. It's really hard to say what's normal after years of not being able to taste pretty much at all, though; you kind of forget what food is supposed to taste like to begin with.

No, the doctors never had much to say about the taste issues. They all seem to just focus on my headaches and that's it. At my last visit, my neurologist kept going back to talking about my headaches, and I kept trying to tell him that I honestly couldn't care less about the headaches compared to some of the other stuff. They latch onto that because it's something easier to deal with, I guess. Really annoying, though.
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