I think I am most worried about our ME/chronic fatigue syndrome friends where the worst case patients cannot handle any muscular stimulation and spend years in dark bedrooms with curtains closed to the outside world. Itīs as though they have continuous myasthenic symptoms that are not relieved by rest, and some interventions (also including exercise) have proved fatal. Normal well balanced children have also contracted the disease. I watched a program once about how the medical system had abandoned this group of patients and just left them to their families to care for at home.

The use of rituximab was used in trials a couple of years ago....
http://www.tv2.no/nyheter/innenriks/...y-3615631.html
But the last I heard is that they ran out of governmental funding for these experiments.
Maybe thatīs why only 10 patients are getting the trial there which ends December 2013 -
whilst there are approximately 15,000 sufferers in the country.
http://esme-eu.com/treatment/a-drug-...le468-110.html


With a little distance to my own worst symptoms I find that energy & health trumps any diagnosis and all opinions,
I care less and less about WIW (whatever-it-was) and more and more about others having to go through the same palava as I did.

Its like Alan said - a lot of emotional support from friends yes, but would have been nice with a little more medical assistance where needed!
If my own symptoms ever return with avengeance then getting a good doctor and getting the right treatment is the most important thing,
Whether I would get it I donīt know, but at least now I know a little more about how to